Friday, April 29, 2011
I really can not believe it has already been 6 months and even better only 3 months till I get to see his little face. Most parents look more toward holding their little one, but with CDH I have somewhat came to accept the fact that it will be a bit longer till we get to hold our baby. So for now I long to see his little face and hands. It is really crazy how the past 6 months have changed my life. Before I got pregnant all I did was work and spend time with family and friends, now in 6 short months my life has been consumed with just thoughts of my baby and the future. We went from planning a shower to worrying about me and baby making it through surgery, back to planning a shower when we found out it was a boy..... then we get the news that he has CDH and now it is just dr appointment after dr. appointment ( but I get tons of ultrasounds and get to see him every week). I only wish I could see the future and see what it has in store for us besides a good long stay in the hospital.
Thursday, April 28, 2011
Our Dr appointment went a lot better this week than last week. Our lil guy is growing and getting stronger. He now weighs 1lb 4 oz! Last Thursday is head to lung ratio ( What they use to measure his lungs) was 1.1 this week it measured 1.6., the larger the better it means his lung is getting bigger! Last week we were told his liver was 60-70 % up and today it looked as if it was only 30-40 % up in his chest. I hope it continues to stay either where it is or even leave the chest all together. With the numbers we had last week the board approved us to be able to have the tracheal inclusion to where they would insert a hydrogel into his lungs to help stimulate lung growth. Dr. Yang wants to hold of just yet on getting that since his lungs seem to be improving slowly. If they can grow on their own that is even better! With all the bad news we have been getting I will take the little bit of good news that they have to give. I know we still have a very long and crazy road ahead of us, there is going to be plenty of ups and downs. Tomorrow I will be 6 Months which means only 3 more months till I get to see my lil guy <3 Please keep the prayers coming for him as he has a long fight ahead of him