Thursday, April 28, 2011
Dr. appointment went well today
Our Dr appointment went a lot better this week than last week. Our lil guy is growing and getting stronger. He now weighs 1lb 4 oz! Last Thursday is head to lung ratio ( What they use to measure his lungs) was 1.1 this week it measured 1.6., the larger the better it means his lung is getting bigger! Last week we were told his liver was 60-70 % up and today it looked as if it was only 30-40 % up in his chest. I hope it continues to stay either where it is or even leave the chest all together. With the numbers we had last week the board approved us to be able to have the tracheal inclusion to where they would insert a hydrogel into his lungs to help stimulate lung growth. Dr. Yang wants to hold of just yet on getting that since his lungs seem to be improving slowly. If they can grow on their own that is even better! With all the bad news we have been getting I will take the little bit of good news that they have to give. I know we still have a very long and crazy road ahead of us, there is going to be plenty of ups and downs. Tomorrow I will be 6 Months which means only 3 more months till I get to see my lil guy <3 Please keep the prayers coming for him as he has a long fight ahead of him
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wow julie i am so happy for you guys im so glad he is doing better maybe in that three months that hole and his organs will drop more and his lungs will grow a lot but i am so happy you guys got good news really makes me happy ill keep the prayers coming sweety just no stressing and take it easy as much as you can
ReplyDeleteJulia:
ReplyDeleteSo glad you started a blog. It really helped me through our entire journey with CDH. I'll add your lilguy to my list of CDH Fighters. Take care of yourself and that precious baby boy.
Janna Caravia
www.ourcdhstory.blogspot.com