Monday, June 27, 2011

Dr appointment for 6-23 went very good!

 Doctor appointment went good . Parker  weighed  4lbs 1oz ( last time was 2 lbs  15oz), He has hair and has practiced his breathing which is  good. We tried to get  more 3D  pics  but as we all know to well he wants to surprise us with  that he looks like when he  comes out. We were able to see that he has  some chubby cheeks. His hands are always in his face  and then he moved  them and  put his  toes up there  lol. My fluid  levels are still in the normal rage, Valastos  said they are  steady and  it looks  good :)  We have a  head to lung ratio of a 3( last time was only a 2.1) so that too was  awesome!  They have gave me  a  date for the  exit procedure  it is  July 29th which means we are ONLY 32 days away  YIKES....  I am  excited yet  scared for him to come. The  doctors  say things are looking  good it is now just waiting to see how the lungs will operate when he comes out.  Once again thanks for all the prayers, I can never thank you all enough.
* Pray that  no early signs of labor  before  July 29th***STAY  PUT  PARKER***
* Lung growth*
and  most important
* his lungs  operate good enough to not have ECMO*

 Next appointment is on 7-7 * Pray for good news* <3
I would love to talk to other CDH mommies! If you would like to add me on Facebook!/profile.php?id=1550320221
Just send me a  message :)

Thursday, June 16, 2011

Things are going pretty smooth with the exceptions of the millions of thoughts running through my mind

I went to the FCI  last Thursday the 9th , it was  4 weeks  past my intervention surgery. As I have said before we expected the  head lung ratio to go down and it did. The ratio went from a 2.8 to a 2.1 not sure yet what the  lung volume is  yet ( Before the  surgery it was only 12%).  This is the 1st Thursday  since we found out the diagnosis  that we have not had an appointment, I must say I would rather have the appointment so I know what  is going on. Next week we go back and we are hoping that the  ratio  goes up a lil bit more and  that he  weighs close to at least 4 lbs** Keeping my  fingers crossed**
I had a regular prenatal appointment on Tuesday and  everything looks  good. She was happy to see that I gained 3 lbs so that brings me to a total of 8 lbs :) I am measuring at 32 weeks  but I was only 30 at the  time but she said I have been measuring 2 weeks ahead of time so it is nothing to worry about.
 I  find it crazy that tomorrow I will be 31 weeks it is all coming to fast. In one way I am excited to get him here  but on the other hand with the odds stacked against us I would rather him  stay in there for another 30 weeks. Even with all the  complications I have had I have loved being pregnant. Those lil kicks that I get from him  just  melt my heart I cant help but  love them, even the  rib shots  <3
I had a conversation with my  husband the other day  that I never would have though I would need to have  before I even see my baby. What are we gonna  do if  the worst  thing happens.... It is something that I know I need to kinda think about  b/c if anything happens I wont be in the right state of mind to think of anything  but I feel like if I even think about it  than I am giving up hope and hope is all I have.
Everyday that  passes I get more and more scared for what  he is going to have to go through and the road we are about to go down.
**For now we pray that 
-He stays put safe and sound right where he is at until the Dr's say it is ok for him to come( min of 43 days)
-Continue lung growth  and  volume
-NO ECMO when he does come
Thank you for everyone who is  reading this and the  continue prayers that  we are getting, I wish I could thank each and everyone of you.

Friday, June 3, 2011

Our lil guy is seeing progress

 On  Tuesday I went to  my regular OB  for my prenatal checkup and  everything there seems to be great, besides they want me to  possibly  gain  more weight. I  have only gained 5lbs  so far  and she said they would like to see at least  10lbs    ( if only they knew I eat all the time  :) ). My blood pressure and everything else  looked good !
Yesterday  we went to the  Fetal Care Institute (FCI) and  we got good news there too.  They said the babies heart looks amazing and  very strong :) We got a head  lung ratio of 2.8 ....last week was 2.4 so  it is moving on  up. I asked  Dr. Yang  where  or what  do we need to be at  or what is  a healthy baby at usually. He( Dr. Yang)  said  that with a  non CDH baby they  have  BOTH lungs that are  at  2.8 or  a lil higher, but we only have  been measuring the  right lung  since the left lung is so compressed and  hidden  by the other organs. Yang  said it appears that  right lung  could be  close to a  NORMAL  lung  but we are not sure  how much left lung is there  b/c it is so hard to see ( We do know that there is  some there we seen it right after the  Gel surgery ). I know both Dr's were excited with the  left lung they did see when they could see it so I feel good with thinking that he has a "good" amount of left lung.  We are  very excited that that  lil guys  right lung is  close to a normal lung. We have a MRI  next Wednesday  and that should give us a better idea of what  the lungs look like and the  volume they have. Last time  the  MRI  showed that his  right lung only had a  12%  volume and that is when the  head lung ratio was in the low 1's.  With it now being  high 2's  we should get some  good volume numbers. They also measure the  fluid around the baby b/c with CDH babies the  fluid can  build up faster than normal   but so far I am still in the  good  zone and they haven't said anything about it being  close to high so I was happy to hear that too!
They  gave us  some  more  3D  pics  but  being a stubborn  lil boy that he is  ( Dustin's son for sure) he kept putting his arm in front of his face and then  he  dug his face into the  placenta. So we will try again next  week I suppose. Since they only weigh him every other week   this week he  weighed 2lbs 15ozs.... almost 3 lbs! 
Please  keep  our lil guy in your prayers  we still  have a  long way  way to  go  and  need every thought and  prayer that we can  get for him. Thanks for the prayers thus far, I don't think I will ever be able to say  thank you enough <3 I must stay pregnant for at least 56 more  days  to make it to 37 weeks .... they  still have not given me a date for delivery.