Doctor appointment went good . Parker weighed 4lbs 1oz ( last time was 2 lbs 15oz), He has hair and has practiced his breathing which is good. We tried to get more 3D pics but as we all know to well he wants to surprise us with that he looks like when he comes out. We were able to see that he has some chubby cheeks. His hands are always in his face and then he moved them and put his toes up there lol. My fluid levels are still in the normal rage, Valastos said they are steady and it looks good :) We have a head to lung ratio of a 3( last time was only a 2.1) so that too was awesome! They have gave me a date for the exit procedure it is July 29th which means we are ONLY 32 days away YIKES.... I am excited yet scared for him to come. The doctors say things are looking good it is now just waiting to see how the lungs will operate when he comes out. Once again thanks for all the prayers, I can never thank you all enough.
* Pray that no early signs of labor before July 29th***STAY PUT PARKER***
* Lung growth*
and most important
* his lungs operate good enough to not have ECMO*
Next appointment is on 7-7 * Pray for good news* <3
I would love to talk to other CDH mommies! If you would like to add me on Facebook
http://www.facebook.com/#!/profile.php?id=1550320221
Just send me a message :)
Monday, June 27, 2011
Thursday, June 16, 2011
Things are going pretty smooth with the exceptions of the millions of thoughts running through my mind
I went to the FCI last Thursday the 9th , it was 4 weeks past my intervention surgery. As I have said before we expected the head lung ratio to go down and it did. The ratio went from a 2.8 to a 2.1 not sure yet what the lung volume is yet ( Before the surgery it was only 12%). This is the 1st Thursday since we found out the diagnosis that we have not had an appointment, I must say I would rather have the appointment so I know what is going on. Next week we go back and we are hoping that the ratio goes up a lil bit more and that he weighs close to at least 4 lbs** Keeping my fingers crossed**
I had a regular prenatal appointment on Tuesday and everything looks good. She was happy to see that I gained 3 lbs so that brings me to a total of 8 lbs :) I am measuring at 32 weeks but I was only 30 at the time but she said I have been measuring 2 weeks ahead of time so it is nothing to worry about.
I find it crazy that tomorrow I will be 31 weeks it is all coming to fast. In one way I am excited to get him here but on the other hand with the odds stacked against us I would rather him stay in there for another 30 weeks. Even with all the complications I have had I have loved being pregnant. Those lil kicks that I get from him just melt my heart I cant help but love them, even the rib shots <3
I had a conversation with my husband the other day that I never would have though I would need to have before I even see my baby. What are we gonna do if the worst thing happens.... It is something that I know I need to kinda think about b/c if anything happens I wont be in the right state of mind to think of anything but I feel like if I even think about it than I am giving up hope and hope is all I have.
Everyday that passes I get more and more scared for what he is going to have to go through and the road we are about to go down.
**For now we pray that
-He stays put safe and sound right where he is at until the Dr's say it is ok for him to come( min of 43 days)
-Continue lung growth and volume
-NO ECMO when he does come
Thank you for everyone who is reading this and the continue prayers that we are getting, I wish I could thank each and everyone of you.
I had a regular prenatal appointment on Tuesday and everything looks good. She was happy to see that I gained 3 lbs so that brings me to a total of 8 lbs :) I am measuring at 32 weeks but I was only 30 at the time but she said I have been measuring 2 weeks ahead of time so it is nothing to worry about.
I find it crazy that tomorrow I will be 31 weeks it is all coming to fast. In one way I am excited to get him here but on the other hand with the odds stacked against us I would rather him stay in there for another 30 weeks. Even with all the complications I have had I have loved being pregnant. Those lil kicks that I get from him just melt my heart I cant help but love them, even the rib shots <3
I had a conversation with my husband the other day that I never would have though I would need to have before I even see my baby. What are we gonna do if the worst thing happens.... It is something that I know I need to kinda think about b/c if anything happens I wont be in the right state of mind to think of anything but I feel like if I even think about it than I am giving up hope and hope is all I have.
Everyday that passes I get more and more scared for what he is going to have to go through and the road we are about to go down.
**For now we pray that
-He stays put safe and sound right where he is at until the Dr's say it is ok for him to come( min of 43 days)
-Continue lung growth and volume
-NO ECMO when he does come
Thank you for everyone who is reading this and the continue prayers that we are getting, I wish I could thank each and everyone of you.
Friday, June 3, 2011
Our lil guy is seeing progress
On Tuesday I went to my regular OB for my prenatal checkup and everything there seems to be great, besides they want me to possibly gain more weight. I have only gained 5lbs so far and she said they would like to see at least 10lbs ( if only they knew I eat all the time :) ). My blood pressure and everything else looked good !
Yesterday we went to the Fetal Care Institute (FCI) and we got good news there too. They said the babies heart looks amazing and very strong :) We got a head lung ratio of 2.8 ....last week was 2.4 so it is moving on up. I asked Dr. Yang where or what do we need to be at or what is a healthy baby at usually. He( Dr. Yang) said that with a non CDH baby they have BOTH lungs that are at 2.8 or a lil higher, but we only have been measuring the right lung since the left lung is so compressed and hidden by the other organs. Yang said it appears that right lung could be close to a NORMAL lung but we are not sure how much left lung is there b/c it is so hard to see ( We do know that there is some there we seen it right after the Gel surgery ). I know both Dr's were excited with the left lung they did see when they could see it so I feel good with thinking that he has a "good" amount of left lung. We are very excited that that lil guys right lung is close to a normal lung. We have a MRI next Wednesday and that should give us a better idea of what the lungs look like and the volume they have. Last time the MRI showed that his right lung only had a 12% volume and that is when the head lung ratio was in the low 1's. With it now being high 2's we should get some good volume numbers. They also measure the fluid around the baby b/c with CDH babies the fluid can build up faster than normal but so far I am still in the good zone and they haven't said anything about it being close to high so I was happy to hear that too!
They gave us some more 3D pics but being a stubborn lil boy that he is ( Dustin's son for sure) he kept putting his arm in front of his face and then he dug his face into the placenta. So we will try again next week I suppose. Since they only weigh him every other week this week he weighed 2lbs 15ozs.... almost 3 lbs!
Please keep our lil guy in your prayers we still have a long way way to go and need every thought and prayer that we can get for him. Thanks for the prayers thus far, I don't think I will ever be able to say thank you enough <3 I must stay pregnant for at least 56 more days to make it to 37 weeks .... they still have not given me a date for delivery.
Yesterday we went to the Fetal Care Institute (FCI) and we got good news there too. They said the babies heart looks amazing and very strong :) We got a head lung ratio of 2.8 ....last week was 2.4 so it is moving on up. I asked Dr. Yang where or what do we need to be at or what is a healthy baby at usually. He( Dr. Yang) said that with a non CDH baby they have BOTH lungs that are at 2.8 or a lil higher, but we only have been measuring the right lung since the left lung is so compressed and hidden by the other organs. Yang said it appears that right lung could be close to a NORMAL lung but we are not sure how much left lung is there b/c it is so hard to see ( We do know that there is some there we seen it right after the Gel surgery ). I know both Dr's were excited with the left lung they did see when they could see it so I feel good with thinking that he has a "good" amount of left lung. We are very excited that that lil guys right lung is close to a normal lung. We have a MRI next Wednesday and that should give us a better idea of what the lungs look like and the volume they have. Last time the MRI showed that his right lung only had a 12% volume and that is when the head lung ratio was in the low 1's. With it now being high 2's we should get some good volume numbers. They also measure the fluid around the baby b/c with CDH babies the fluid can build up faster than normal but so far I am still in the good zone and they haven't said anything about it being close to high so I was happy to hear that too!
They gave us some more 3D pics but being a stubborn lil boy that he is ( Dustin's son for sure) he kept putting his arm in front of his face and then he dug his face into the placenta. So we will try again next week I suppose. Since they only weigh him every other week this week he weighed 2lbs 15ozs.... almost 3 lbs!
Please keep our lil guy in your prayers we still have a long way way to go and need every thought and prayer that we can get for him. Thanks for the prayers thus far, I don't think I will ever be able to say thank you enough <3 I must stay pregnant for at least 56 more days to make it to 37 weeks .... they still have not given me a date for delivery.
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