I went to the FCI last Thursday the 9th , it was 4 weeks past my intervention surgery. As I have said before we expected the head lung ratio to go down and it did. The ratio went from a 2.8 to a 2.1 not sure yet what the lung volume is yet ( Before the surgery it was only 12%). This is the 1st Thursday since we found out the diagnosis that we have not had an appointment, I must say I would rather have the appointment so I know what is going on. Next week we go back and we are hoping that the ratio goes up a lil bit more and that he weighs close to at least 4 lbs** Keeping my fingers crossed**
I had a regular prenatal appointment on Tuesday and everything looks good. She was happy to see that I gained 3 lbs so that brings me to a total of 8 lbs :) I am measuring at 32 weeks but I was only 30 at the time but she said I have been measuring 2 weeks ahead of time so it is nothing to worry about.
I find it crazy that tomorrow I will be 31 weeks it is all coming to fast. In one way I am excited to get him here but on the other hand with the odds stacked against us I would rather him stay in there for another 30 weeks. Even with all the complications I have had I have loved being pregnant. Those lil kicks that I get from him just melt my heart I cant help but love them, even the rib shots <3
I had a conversation with my husband the other day that I never would have though I would need to have before I even see my baby. What are we gonna do if the worst thing happens.... It is something that I know I need to kinda think about b/c if anything happens I wont be in the right state of mind to think of anything but I feel like if I even think about it than I am giving up hope and hope is all I have.
Everyday that passes I get more and more scared for what he is going to have to go through and the road we are about to go down.
**For now we pray that
-He stays put safe and sound right where he is at until the Dr's say it is ok for him to come( min of 43 days)
-Continue lung growth and volume
-NO ECMO when he does come
Thank you for everyone who is reading this and the continue prayers that we are getting, I wish I could thank each and everyone of you.
Julia-
ReplyDeleteI just wanted to say that I have been following Cambell's story and praying for you guys. I am so happy to hear of his progress. I just met Dr. Yang on Friday at the Cherubs conference in Orlando, Florida. I thought he was so impressive and he explained a lot about the gel intervention and how excited they were about it! I think it is wonderful what you are doing!
Hugs,
Jennifer
Mom to Dakota 12-25-2008
R-CDH survivor
jennifertrafton@hotmail.com
Thanks for all the prayers Jennifer. Yang is a gift from God, there has not been one time that I have not left there feeling like he has not told me and explained to me everything he could. He lives, eats and breaths learning about CDH and is very passionate about it.
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