Everything seems to be going rather smooth right now, no big changes or concerns. I suppose I am happy about that b/c when Parker gets here things will become a lil crazy. I had a Dr.appointment with the FCI yesterday and my lil guy now weighs 5 LBS! So he is still gaining weight like he is suppose to! His head lung ratio went down from a 3 to a 2.5, the doctors don't seem to be concerned with that b/c his lungs are still "growing". I was sent to get a steroid shot yesterday and another one today to help with his lung maturing at a rapid speed. I had an ECO yesterday and things still look good with his heart. Still has good blood flow the only "concern" is that it is smashed a little on the left side due to all the other organs pressing against it , but that is to be expected with CDH babies they say. I asked the doctors if there were any other big concerns other than the obvious with his lungs and he said no, that made me feel a bit better that so far there isnt any big concerns with anything else. My fluid levels have went up a lil bit out of the normal rage and are now in the moderate rage but again they say it is no big concern yet. So things seem to be staying pretty steady so far.
Delivery is only 21 days away, in 3 weeks at this time Parker will be here! I am full of so many mixed emotions. I tell myself on a daily basis that he will be ok and he will fight but I cant get rid of the thought of "what if". As long as he has fight in him and is fighting through this, I wont give up i just cant. Our life has already changed so much and here in 21 days we take another long road before we can bring him home. I cant wait and I pray that things will be somewhat normal one day and he will be a happy healthy lil guy.
I am not sure if many people even read this blog but I am hoping that whoever does will pray that Parker
- does NOT attempt to make an early arrival
- has lungs strong enough to avoid ECMO
- is strong enough to fight through this and come home to his mommy and daddy and the rest of the family
Hi Julia,
ReplyDeleteI am a mom of a little CDH survivor and we are sending your family & Baby Parker many prayers!
Please feel free to visit my blog ourmiraclemattiaus.blogspot.com (he is almost 11 months now, but i am still writing about the NICU) or ask me any questions as we have been in your shoes - the anticipation, fear and hopes are all the same!
Take care, Angela
Julia before my son was born I wasn't sure how I felt nut I was defiantly excited to find out how health6 and beautiful he was
ReplyDeleteFound your blog through Facebook. I am praying for Parker and the rest of your family. Think positive!!!
ReplyDeletePaola
My Dear Daughter , you are amazing . Everything that you have went through and still you hold the positive side in you , You are a wonderful mommy already and he isnt even here yet , I love you so much for that . Our lil
ReplyDeleteParker will be so proud of his mommy and daddy for doing everything you both have done . With Gods will he will be a healthy lil guy running around , swimming , playing , and making mommy and daddy chase him . Of course grandma and grandpa will be spoiling him rotten . But thats a part of being healthy .The time I have spent with you during your pregency has been the best days of this part of my life , We are proud grandparents , and you both have made that possible . THANK YOU BOTH FOR BRING PARKER INTO OUR LIVES . Our prayers are with you always !
I am praying for you! I am a mama to a 11 month survivor as well... www.finleyanabelle.wordpress.com. I remember all too well where we were just one year ago and I would love to be there for you. I know before Finley came I wasn't ready to talk to other mamas, but once we were in the hospital, I really wanted to connect with people who understood what we were going through. I am here anytime.. I will send you a DM on Facebook so you have my phone number.
ReplyDeleteGod is good- he loves you and Parker. Trust him.
Best,
Liz
Go Parker!!! He's growing well and he is going to be one strong lil man!! Can't wait to see you guys!! I am sending prayers your way!!
ReplyDeleteThank you everyone. I pray god listens to everyone that is praying. This has by far been the hardest thing I have ever had to do in my life. It is so hard to think into the future when the future is just so unknown. Whether he is here for 1 min or years he will always be my Miracle baby for making it through all he has. Again thank you for the prayers and kind words <3
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